Being
educated and informed will help you
make the best decisions about your
cancer treatment. Get all the information
you can as early as possible concerning
your evaluation, treatment, and possible
side effects. The sooner you know
about side effects and possible treatments,
the more likely you are to protect
yourself against them, or manage them
more effectively.
Your doctor, nurse and other families are your best sources of information, but you must remember to ask questions.
There is no such thing as a dumb
question. Don’t be afraid
to ask anything that is on your
mind. To make the most of your opportunities
to learn from your health care providers,
read as much as you can and make
a list of questions before each
appointment. Also, ask family, friends,
and your support team to help you
remember the questions. These approaches
will help you talk more effectively
with your doctor or nurse. Finally,
you or your caregiver should consider
taking notes during your visit to
ensure you remember what you learned.
Here
is a list of questions which you
may wish to ask your nurse or physician:
General
• Do
you typically treat patients with
my diagnosis?
• What stage is my cancer?
• Is there anything unique
about my cancer that makes my prognosis
better or worse?
• Should I get a second opinion?
Treatment
• What
is the goal of treatment?
• To cure my cancer or stop
it from growing?
• What are my treatment options?
• How can each treatment option
help me achieve my goal of therapy?
• What risks or potential
side effects are associated with
each treatment?
• What research studies (“clinical
trials”) are available?
• Are there any clinical trials
that are right for me?
• How long will I receive
treatment, how often, and where?
• How will it be given?
• How will I know if the treatment
is working?
• How might a disruption in
my chemotherapy dose or timing affect
my results?
• How and when will I be able
to tell whether the treatment is
working?
• What are the names of all
the drugs I will be taking?
• Can I talk with another
of your patients who has received
this treatment?
• Are there any resources
or Web sites you recommend for more
information?
Tests
• What
types of lab tests will I need?
• Will I need x-rays and scans?
• Can you explain the results
of my complete blood count (CBC)?
• Are there tests for the
genetic make-up of my cancer?
• Will I benefit from having
my cancer evaluated for its genetic
make-up?
• How frequently will I get
the tests?
Side
Effects of Treatment
• What
possible side effects should I prepare
for?
• When might they start?
• Will they get better or
worse as my treatment goes along?
• How can I prepare for them
or lessen their impact?
• Are there treatments that
can help relieve the side effects?
What are they? Do you usually recommend
or prescribe them?
• Which risks are most serious?
• Will I require blood transfusions?
Why?
• How can I best monitor myself
for complications related to either
my disease or my treatment?
Protecting
Against Infection
• Will
my type of chemotherapy put me at
risk for a low white blood cell
count and infection?
• Can I help protect myself
against infection right from the
start of chemotherapy, instead of
waiting until problems develop?
• Am I at special risk for
infection?
• What are the signs of infection?
• How serious is an infection?
• How long will I be at risk
for infection?
• What should I do if I have
a fever?
• How are infections treated?
Daily
Activities
• How
will my cancer treatment affect
my usual activities?
• Will I be able to work?
• Will I need to stay in the
hospital?
• Will I need someone to help
me at home?
• Will I need help taking
care of my kids?
• Are there any activities
I should avoid during my chemotherapy?
What
to Expect After Treatment
• What
happens after I complete my treatment?
• How can I best continue
to monitor myself for complications
related to either my disease or
my treatment?
• What kind of lab tests will
I need?
• How frequently should I
get those lab tests?
• What types of x-rays and
scans will I need?
• How often do I need to come
in for checkups?
• When will you know if I
am cured?
• What happens if my disease
comes back?
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